Hello!

My name is Lenneisha, proud Mum of Khari, and my inspiration behind this book.

Khari has Sickle Cell disease (HBSS), diagnosed from birth. Throughout our journey so far, it has been difficult to find child-friendly text, so that he can learn about his condition in a comprehensive way that a child can understand. This is the reason why I wanted to create this book and moreover continue to help raise awareness and educate children, parents and the wider community about Sickle Cell.

Khari has shown so much strength & resilience on our journey so far, I am so so proud of him. It was hard to accept his diagnosis in the beginning, as I was unaware that I was a carrier of the sickle cell gene - sickle cell trait. My knowledge of sickle cell at the time was quite vague and basic, but I quickly became aware of why it is so important to know your genotype. Over time, I found confidence in telling our story and connecting with fellow parents and sickle cell groups.

We stand with all fellow Sickle Cell Warriors and wish you and your families an abundance of strength and love.

Feel free to follow us on our social pages, tag us in your posts, or just say hi!

Thank you
Lenneisha ❤